Neurology PROMs

Neurological patient reported outcome measures (PROMs) support the diagnosis and treatment of patients with conditions and diseases that affect the nervous system, and track related symptoms such as cognitive function, physical function, and pain behavior.

Condition	PROM	PROM use in literature
Alzheimer’s	•Instrumental Activities of Daily Living Scale (IADL) •Blessed Dementia Scale (BDS) - Proxy Reported	IADL use BDS use
Epilepsy	•Quality of Life in Epilepsy (QoLIE) - Patient-Weighted* •Seizure Severity Questionnaire (SSQ) Version 2.2* •Neurological Disorders Depression Inventory for Epilepsy (NDDI-E) •Epilepsy Foundation of America (EFA) Concerns Index	QoLIE use SSQ use NDDI-E use EFA Concerns Index use
Headache	•Headache Impact Test-6 (HIT-6)*	HIT-6 use
Migraine	•Migraine Disability (MIDAS) Test*	MIDAS use
Parkinson’s Disease	•Parkinson’s Disease Quality of Life Scale (PDQUALIF)*	PDQUALIF use
Post-concussion symptoms	•Post-Concussion Symptom Scale (PCSS)*	PCSS use
Stroke	•Stroke Impact Scale (SIS)-16*	SIS-16 use
Whiplash	•Whiplash Disability Questionnaire	WDQ use
All neurological conditions including neuropathy	•National Institutes of Health (NIH) Patient-Reported Outcomes Measurement Information System (PROMIS) validated person-centered measures to track all relevant symptoms including: •Cognitive function •Fine motor skills •Positive affect and well-being •Upper and/or lower extremity function •Physical function •Pain intensity and/or Pain interference •Anxiety •Depression •Sleep disturbance •Below are links for more information on OutcomeMD’s use of • PROMIS Computer Adaptive Tests, • PROMIS, Neuro-QoL, ASCQ-Me, & NIH Toolbox

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